lulu roo - Danielle Moss

06.28.21

lulu roo

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Jul 6

Margot Rose, you are ✨4 years old ✨ today! I am in awe of you and could listen to you talk and laugh every single moment of every day. For a child that’s been pretty isolated for the last 2 years, you will walk up to anyone and tell them all about your favorite things - your confidence, kindness, and ability to be everyone’s friend are incredible. You’re a world changer and I am just so lucky you’re mine.

You’ve been through more than any child should ever have to go through and found magic and light and danced your way through it all. I love you up to the sky down to the ground and over every star and rainbow times 20 million forever. Happy Birthday, super girl 🦄🌈💕 #LittleMargotRose #HappyBirthday

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Jul 5

I vowed to get this up before my girl’s 4th birthday and just made it. Head over to my blog (link in bio) to see Margot’s sweet soft pink big girl room. 💕

Follow my shop @daniellemoss_ on the @shop.LTK app to shop this post and get my exclusive app-only content!

#liketkit #LTKhome #LTKkids #LTKfamily
@shop.ltk
https://liketk.it/3Jk8m #serenaandlily #cratekidsstyle

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Jul 5

Margot is DONE with steroids!!! I shared this in stories but over the last 2 years, dexamethasone was one of the hardest medications for her. Steroids make you feel sore and irritable, and they are very bitter, so getting her to take them came with some of the hardest moments for us. There was a period when she couldn’t take them and needed an NG tube. It was all way too much, but we worked together and got through it. Downing 2 @onceuponafarm pouches immediately after really helps.

The relief I thought I’d feel with her port removal was felt today. The IV chemo, spinal taps, and steroids are done. And in less than 20 days she will take her last dose of oral chemo 😭

So proud of you, my super girl 🌈🦄💛

#supermargottotherescue

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Jun 30

She had her last IV chemo, spinal tap, and port removal today. We’re not done, but this is a moment we’ve been waiting for for over 2 years. I don’t know what to feel today - it’s a mix of relief, sadness, anxiousness and worry.

I’m always there to hold her hand, and hate having to let go. My heart sunk when they wheeled her back, and I’m distracting myself until she’s in back where she belongs ✨💛

Our journey isn’t over, and it won’t magically be over or behind us when she takes her last dose of oral chemo in a few weeks. But it’s the beginning of a new chapter for our family.

Thank you to everyone who’s supported us on this journey. It means so much 💛✨🎗 #supermargottotherescue

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Jun 29

Swipe to stain the stairs and add herringbone. 😍

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Jun 28

She turns FOUR next week and will have her last IV chemo, spinal tap, and port removal in just a few DAYS. We have been at this since May 2020 and I cannot believe we’re finally here. 😭 Kate wasn’t even born when it all started and is older than Margot was at diagnoses. I can’t wrap my mind around that.

I have SO many feelings right now — it’s a push-pull — last week I was on a high/so grateful and today I’m still grateful but also sad and angry. A reminder that those feelings can coexist. The weight, what she went through, what we went through, what we missed out on…it’s all hitting me. I am so grateful for therapy and lexapro.

Treatment and isolation aside, I am happier. My priorities are in check. The days of not having control over my own life and schedule are behind me. No more obsessing over site metrics and things that don’t matter.

Months and months ago, I put it out there that I wanted to get in touch with a motherhood site willing to support us and other families by sharing our story. Someone at @mother.ly reached out and I couldn’t quite process everything, but I’m feeling a bit more ready to try. Or I hope I am. I might even try to work on a blog post today. There’s just so much to say.

But this girl. The light that is my Margot. Her ability to continue to shine even when things are hard and scary. She is kind and loving. Smart and witty. She has gone through way too much and shouldn’t have to be strong, but she is. And she does it all with this Margot magic that I can’t put into words. She has this confidence - especially for someone who’s been so isolated - and it is amazing to watch. She truly has a heart of gold and sends videos to kids who are newly in treatment to help normalize having a port or taking medicine. I remember saying my one hope for my children was that other people would tell me they are kind. She’s more than I ever could have hoped for. ✨

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Jun 28

My sweet girl. I can’t believe you’re TWO years old. You came into our lives during the most impossible time and have brought us nothing but light and happiness and love every day since. To know you is to be completely obsessed with you. Happy birthday, Katertot 🎉🥳🎈💕

A few kate gems:
Mommy always came back
I miss you mommy (said when I’m 2 feet away)
“I love it” and “my favorite”
Ucocorn =🦄
Pineapple = 🍍
F*ck = 🦊

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Jun 27

Happy 2nd Birthday, Katertot! 🎂 You are the funniest, snuggliest, sweetest little person and we couldn’t love you more 🥳🎉🎈

When I showed Kate the second photo and asked what she was doing she said “freak out” 😂 #littlekateelizabeth

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Jun 27

Just a few more weekends until our move. Feeling ready but I’m going to miss this 🌳🪴 #backyard #patiodesign

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Jun 26

Soaking up her last day as a 1 year old 😭🤍 #LittleKateElizabeth

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Jun 25

Trying to distract myself with @nmeyers home by my favorite @markdsikes in @archdigest. Ordered a similar striped ottoman for our family room (swipe to see) and want pretty much everything. It’s perfect.

Everything feels so heavy - traveling back in time 50+ years and taking away basic rights hits so hard. As a mom to 2 girls and someone with a soul I am not ok. Sending you all love today. Please vote.

photography by @amyneunsinger

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Jun 24

WE DID IT! The news has me feeling sick and sad today but this is something good and means the world to families like ours. ✨💉

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Jun 21

I cannot believe how good this mess looks! We’re replacing the parquet with herringbone and adding a new runner. Swipe through to see the before. #homerenovation #staircase #oldhouse

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Jun 20

Patio work date with my 🐶 and there’s a new post up on danielle-moss.com. Everything in our yard is linked on my blog in the shop under “shop my home” 🪴

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Jun 20

Days like today aren’t easy for all of us. I suppose I’m used to it by now, but as someone who grew up without a dad, I want to share my story with those of you who need to hear it today. I’ve only ever shared that my dad isn’t in my life, and this isn’t the whole story, but it’s more than I’ve ever had the courage to share. I hope it helps someone today. 🤍

My parents divorced when I was a year old. My dad was involved with some not great stuff, and for our safety, my mom changed the locks and dropped me off at my grandparents house. He was in and out of my life when I was little - I barely saw him and when I did, he was extremely manipulative. I probably stopped seeing him in my early teens? I can’t remember.

He was not a good man. He was a sociopath and narcissist, and he was not safe. He had 4 kids and I was the only one he sort of saw - I know I’m better off without him. I miss the idea of someone who for me, did not exist. He’s been out of my life longer than he was in it. Sure, it’s sad, but I’m ok. I’ve healed.

If you’re feeling sad, missing your dad, or grieving the dad you never had, I’m sending you love today.

Grateful my girls won’t be able to relate to my story at all, and that their dad will *always* be there for them in every way. ✨

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Jun 19

There’s nothing sweeter than a dad and his girls 💕 Happy Father’s Day @conorpscanlon

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Jun 18

Even when you’re *so close* to the end, cancer has a way of reminding you that it’s still here. 35 days until her last dose of chemo. Her port removal is less than 2 weeks ago. But while in treatment, a fever means a trip to the ER, so here we are. 😕 I was sure these ER fever trips were over for us.

Since she’s on chemo, they have to check her labs to make sure she can fight an infection (she can) and have to make sure she doesn’t have an infection from her port (she doesn’t) or a virus (also clear).

She’s currently 102° but seems ok. Eating snacks and watching movies. Labs look good and she tested negative for c*vid so we should be cleared to go home soon. She keeps asking to go home because that’s where she should be. This is no way to spend a summer Saturday. And we’re the lucky ones in this cancer world. That’s what gets me.

I scrolled through IG for a moment and was reminded of our first few weeks inpatient, wishing we were home. Seeing families out living while we’re in the hospital. And it just makes me want to fight harder. We need better treatment options and a cure for these kids.

A reminder: Margot hit remission 2 years ago (as of tomorrow). It’s not cancer that she’s fighting or that ran her little body down. It’s the chemo. It’s life saving, but I know we can do better. Please consider donating the cost of a cup of coffee to help fund better treatment options for our kids. Because the protocol in place is what will be used for the ~ 45 kids who are diagnosed daily. I know you think this only happens to other people. I get it. I felt that way, too.

Our kids deserve so much more.

Link to donate to fund research in bio and stories.

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Jun 17

Let the before and afters begin
✌🏼out carpet

#beforeandafter #oldhouselove #oldhouse

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Jun 17

Patio season at the new house 🌳

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Jun 16

She’s finally ours. ✨ @conorpscanlon surprised me with 🍾 and we had our first meal as a family (a pizza picnic) in our new home. It’s a day I never want to forget.