Personal

Thoughts From a Cancer Mom: What It’s Like Going Through Treatment During COVID

I am someone who does not take any risks when health is concerned. Our family started isolating a week early last year, months before our daughter’s Leukemia diagnosis. Yes, our circumstances are different than most, but we are not that unique and as a society, we have completely let down those who are at-risk. How can we care so little about the elderly, unvaccinated children, and everyone with health issues? We unmasked too soon, unvaccinated people are spreading COVID to those of us who have done our part, and now healthy children – the one group that wasn’t vulnerable – are getting sick.

Today, I want to talk about what it’s like living the way we do, watching others disregard COVID, and the need to protect my daughter who has been in treatment for Leukemia since May 2020. 

From always wearing a mask indoors to isolating when everyone went back to normal, it has been an extremely lonely sixteen months. It was my hope that we could make the most of these summer months, and sure, we had a few patio lunches, but I’m now back to not being able to see vaccinated friends outside unless we are six feet apart. Pardon my language but this is completely fucked. I’m not sure I can eloquently put into words what it feels like to see parents hope that schools are unmasked this fall. I am appalled and have had to unfollow quite a few people this year. We were so close to being able to send Margot to preschool two hours a day and now? Not a chance. 

We had this. We were so close. Vaccinated adults could safely see each other indoors. The CDC made a huge mistake saying vaccinated people could unmask indoors without proof, because those who weren’t vaccinated took advantage of this honor system. We did not consider unvaccinated children or those who are at risk when those decisions were made – we know our country is not ready for an honor system. Now we’re seeing delta spread through the vaccinated because of the unvaccinated. I’m now forced to stop doing the very few things that made my life feel remotely normal. My friend’s healthy kids are starting to get COVID.  Vaccinated adults are getting sick. All because we couldn’t wear masks for a little bit longer.

I understand some people fear vaccines and not everyone can get vaccinated, but if you can’t or won’t get vaccinated, wear a mask. Distance. Don’t go to events or do anything indoors unmasked. It’s really that simple. 

We were so close to things feeling normal, and now I can’t see my vaccinated friends outside unless we’re distanced. Dining on patios is over for me. The thought of passing delta to Margot, her immune system being even more suppressed, ending up in the hospital, and having to hold her chemo doses while she recovers (which increases the risk of relapse) is not a risk I can take. I realize that not everyone has vulnerable kids to worry about but why don’t we care enough about everyone to live carefully? I can tell you that we’d be very careful if our kids were healthy because the alternative feels incredibly selfish and reckless. 

Childhood cancer without a pandemic is a horrible and isolating thing to go through. Some of my friends have been truly wonderful, but there are others who over the course of the last sixteen months just moved on with their lives, went back to normal, and forgot about us. The friends who haven’t checked in in months are no longer friends, and I have to tell you – it happens to all of us. I’m in a support group with 45 moms and we’re all sharing the same stories. The same fears. It’s really lonely, so add in a pandemic and the inability to even see friends and being forgotten is magnified.

I get messages telling me how strong I am and how we’re warriors – as if I was equipped to watch my child go through this. I can’t tell you how often people tell me they “can’t even imagine” what I’m going through. I get it – you think this won’t happen to you. I thought the same thing. Those words tell me that they are either completely void of all empathy or just can’t go there. Pretty sure it’s the latter.

Oh, that poor family. Must be awful for them. Yes. Yes it is. 

This isn’t just about Margot, but the past year and-a-half forced me to think of everyone who is at risk as well as those who weren’t at risk but lost their lives to covid. You’d think the elderly would be enough of a reason to be careful but we’ve made it pretty clear that we don’t value them. I lost my great aunt to COVID because an unvaccinated person got her sick. She died alone and I was unable to attend her funeral. 

We would have been forced to isolate last winter to protect Margot, and the added fear of COVID was too much. As someone who runs anxious when things were normal, it was a nightmare. Watching others disregard how serious this was really took a toll on me. I don’t say this to sound judgmental but want to share my experience as someone who wants to keep her child out of the hospital. Watching everyone traveling,  attending gatherings, planning weddings – it all felt so unnecessary and so unbelievably careless. And here we are with the worst case of deja vu, about to go into another fall and winter, fully prepared to spend the coming months alone. 

I’m not trying to bash everything – certain things were once safe. All outdoor activities did feel safe. A vaccinated person masked and traveling feels safe. Taking a baby indoors where the vaccine statuses of those around you are unknown is mind-boggling, but it is what it is. Dining indoors or going to the grocery store when unvaccinated people are spreading COVID all feels so unnecessary. We were so close, and now we’re on our way back to where we started. 

I know the pandemic has been hard for everyone and we’ve all been impacted in one way or another – no part of me is implying that people’s families, businesses, and lives haven’t been torn apart. I can’t speak to everyone’s experience, but I can speak for those of us who have so much at risk. I can tell you that parents walking their kids through cancer treatment are enraged and terrified. We’ve been in a lonely bubble, and it’s so unfair that after doing things right, the little normalcy we had is now gone. 

Please consider others like us. look at the science. At the data. Be safe. Wear a mask. And if you’re on the fence, please get vaccinated. 

We are in this together, and the entire experience has magnified why so little funding goes to childhood cancer. All it has taught me is that we as a society truly do not value those who are sick or at-risk. It’s selfish. 

I realize this post may seem extreme to some but how can I be anything other than extreme when it comes to keeping my daughter safe and to thinking of others? If I don’t do everything in my power to keep her safe, no one else will, and I feel an immense sense of responsibility to use this platform to advocate for others. 

Please get the vaccine if you are able. 

And wear a mask. 

52 comments
Leave a comment
  • I think you are a bit naive in saying your family isolated before everyone else. Many families isolated early including mine whose husband works for an airlines. We knew mid January how bad it’d be and ordered our supplies and hunkered down. I love your posts but you can be a little less holier than though.

    1. That’s what you got from this post?!? That she is being holier than thou? You ma’am, lack empathy.

    2. Pretty sure she was giving an example of how her family has experienced Covid – not judging when others began isolating.

      What happened to giving others grace?

    3. @Susan, maybe stop to think about why this offended you and why you think that was a productive comment. There is far more substance to the message than this one point, and I don’t see how it matters in the grand scheme of things. And the spelling is “holier than thou” since you are one to parse detail.

      Danielle, sending you good thoughts as always. I know this is hard and feeling harder. Thank you for sharing your perspective. You have people in your corner even if it doesn’t always feel like it. Wishing you and your family all the best.

    4. Susan, it might be worth reflecting on what caused you to feel so strongly about this one passage and why you felt commenting on it was productive. It isn’t really the core of Danielle’s message. However, since you are one to parse detail, the spelling is “holier than thou.”

      Danielle, wishing you well as always. I know this is so hard and feeling harder. Know you have people in your corner even when it may not feel like it. Best wishes to your whole family.

    5. I feel sad for you, Susan. Yes, we stopped doing anything a week before everyone went into lockdown and that was a tiny, insignificant detail in this post. Have some empathy.

  • This message is SO POWERFUL. Thank you for sharing. I don’t have an immune-compromised child but I do have immune-compromised parents and I feel ALL OF THIS.
    THANK YOU for articulating my feelings exactly.
    Thinking of you and your family.

  • Hi Danielle,

    I’m vaccinated against COVID. I wear a mask indoors (and often outdoors at the moment). I’ve always vaccinated myself and my kids. I passionately want everyone to get vaccinated and do everything that they can to protect our most vulnerable and the community at large. So that’s where I’m coming from.

    I remember you previously (pre-children) making some comments regarding your hesitancy to have the flu vaccine. It would make sense if your perspective changed immediately because of your daughter, but most people with vaccine hesitancy won’t share your experience.

    I think it would be enormously impactful for people with vaccine hesitancy to hear about why you used to be in their position and why you can empathise with them. What would have changed your mind? Obviously COVID is many, many magnitudes more serious than the flu, but I imagine that a lot of your post would apply to the flu as well. I think you could really make even more of a difference by acknowledging your evolution on this.

    Wishing you the very best.

    1. Hi Ella! Great memory. I honestly can’t remember what I said but I had never gotten the vaccine because I was always healthy. My OB said to get a flu shot while pregnant and that was that. I’ve gotten one every year since and will continue to do so. I think the # of COVID deaths would have had me first in line like pretty much everyone I know, but of course I can’t say for sure because I have a baby and toddler to protect. But I think you’re right – I could say that I did not typically get it, although I’m not anti-vaccines. My girls are both vaccinated so not sure how helpful it will be? I appreciate your thoughts on this!

  • Totally agree with everything you said. Thank you for sharing. We need to do better as a society and protect our elders and for God’s sake our unvaccinated children.

  • Hello mental gymnastics! Basically, we need to remember to get vaccinated or a vaccinated person might get sick from the virus they were vaccinated against because someone is not vaccinated. Per Dr Fauci yesterday: “The viral load of delta variant in the nasal pharynx of the vaccinated is the same of the unvaccinated….” Additionally, of course parents want the masks off their children -the mortality rate for healthy children is ZERO. You are living through an absolute nightmare and I am sorry but please stop blaming the people not wearing mask or choosing not to take the shot that is under EUA. Everyone needs to be accountable for their own health.

    1. Julie, the indifference you seem to have toward protecting children (and anyone else for that matter) is appalling.

      1. Indifference? Words directly from Dr Fauci and statistics directly from the CDC website. What’s appalling is masking children and isolating them when the survival rate for healthy children is basically 100%.

        1. We aren’t only protecting healthy children. We are all part of a community and that includes unhealthy children, the immune compromised and the elderly. Children don’t exist alone and while they might recover, the people that care for them and/or live with them might not. The actions of one person impacts so many more.

    2. 1. Yes, vaccinated people are getting COVID, but the unvaccinated are getting it at rates that are magnitudes higher, so they still are the problem.
      2. Variants of infectious diseases come about faster and more frequently when people behave carelessly towards them (i.e. not wearing masks)
      3. Just because a kid doesn’t die from covid doesn’t mean parents should be okay with their child getting it. Putting aside extremely immunocompromised children like Margot, children who have asthma, heart conditions, or any other underlying health concerns could still suffer greatly even if they don’t die. Why would we want that? My otherwise healthy 11 month old son was just sick for 9 days with a non-COVID virus and it pained me to see him like that. Why would we want to knowingly expose kids just because death may not be on the table?
      4. Who is to say that another variant of this virus won’t affect kids more than the ones we know about
      5. Something like 97% of cases are in the unvaccinated and we know masks help control the spread of the virus, so of course it’s the fault of people who don’t wear masks.
      6. Research on mRNA vaccines and specifically on the coronavirus family of viruses has been going on for yeeeaaarrrsss, so yes it’s under EUA, but it’s not like it was developed overnight.
      7. Saying people should be accountable for their own health is fine when you are talking about aspects of personal health that don’t affect others. If you want to eat unhealthy processed foods and your family doesn’t, that won’t affect their health. If you choose to live recklessly while an infectious disease is amongst us, it can and will impact the health of those around you and may in fact kill them. The individual freedom/liberty attitude has gone way too far.
      8. My guess is that you are not a doctor or a scientist. What gives you the confidence to believe that you know better than experts with decades of training? I for one will stay in my lane and trust those who have dedicated their lives to medicine and science.
      8. I can keep going, but I’m sure you’re too stuck in your ways to consider any of these points given that you had the audacity to leave that comment on the wall of a mother who just wants to protect her child and other children like hers.

      1. Thank you for taking Eve time to send a logical reply. My blood was boiling at that comment.

        Molly

      2. I really appreciate this. I will also say, and I was REALLY upset today after canceling a “safe” outdoor lunch with a vaccinated friend because it felt unsafe (ugh) but I thought this was clear. Yes, I want to keep Margot safe, but this is about everyone. The elderly were high (high!) risk and too many died. Perfectly healthy people died. Kids are getting sick! It’s not just about my child. There are people with serious health issues of all ages that we need to consider.

  • As someone who lost their grandpa to Covid (who died alone in the hospital)—I completely agree. It is infuriating to see how selfish people have been through this whole pandemic.

    1. I am so sorry, Emily. I lost my great aunt to COVID. She died alone in a nursing home and I couldn’t attend her funeral. We were so close – it’s just awful. I am so sorry for your loss.

      1. I lost my dad last year to non Covid and I couldn’t see him in the hospital bc visitor restrictions or have a funeral. The impact of this pandemic is so so much greater than even those who got sick from Covid.

  • So well written and so well said. Thank you for caring about others and leading by example, when you yourself have so much to bear. If we could all channel our energy into respecting others the way you do, we’d be in a much better place. Sending prayers into the universe for the health of Margot and your family during this deja vu wave, and donating to Alex’s Lemonade Stand in the meantime to find some positivity amidst the chaos of the anti-science crowd.

    1. Laura, you seem like a bitter, apathetic individual, especially in a pandemic. I’m sorry for you and I hope you learn how to be more compassionate and empathetic.

    2. Laura, what do you gain from saying such hurtful things to someone? Danielle is a human being. A mother. Facing every mother’s nightmare. And doing such much good for others in the process. My mother taught me “if you can’t say anything nice, don’t say anything at all.” You should remove this post.

    3. Laura, what do you gain from saying such hurtful things to someone? Danielle is a human being. If you can’t say anything nice, don’t say anything at all. You should remove this post.

    4. Good lord. Then don’t follow her or her blog. You seem like a cruel human being. How does that feel?

  • Hi,

    We’ve never met and most likely never will. Your family is going through something horrible during normal circumstances…and this exacerbates it beyond measure. There are no words to make your world seem more normal or fix anything.

    But, please hear this. Thank you for being an advocate. I don’t have cancer and I don’t have kids. I’m – for all intensive purposes – healthy and vaccinated. Your story sheds light on how we (and in other situations, me) overlook the vulnerable. It encourages me to think for the greater good and how to love others I don’t even know.

  • Besides all of the obvious outcomes of the pandemic, one that sticks out most to me is how self centered so many people are. We’ve been isolated as well due to having a baby during the pandemic and it’s been so hard. Fortunately, where I live, we still have a mask mandate and I hope it stays for awhile until things settle down a lot with this delta variant. Because we’ve been more isolated than most, and I think a lot of people have a hard time understanding, we’ve felt mostly forgotten by a lot of people in our lives. Even in our family, some refuse to vaccinate and that makes seeing anyone (especially now) super difficult. It’s hard to imagine how we’ll ever go back to “normal” – not just in terms of isolating and masking but also in terms of relationships that feel like they’ve been changed forever. Time will tell I guess!

  • I hope it was a huge release to write this, that is a lot to carry on top of all the heaviness of this past year that you’ve been through. I hope it will have an impact on people that don’t understand how important precautions are and more people will start to take the pandemic seriously.

    My family has been strict too-I am immune suppressed due to an autoimmune disorder and I have a toddler with special needs. I have learned more about people in my life than I have learned in all of the previous years that I’ve known them. Some family members think we are keeping our kids from them-some friends think we are paranoid or don’t want to hang out with them-etc etc etc.

    It felt like such a light when the trends were going downward and some things felt safe enough to do when they were outdoors and masked. I hope we can get back there soon 🙂

    All of the good vibes and prayers to you and your family!

  • Danielle,
    You say that your post may seem “extreme” to some. Written from the perspective of a mom whose daughter’s life in many ways depends on staying safe from Covid, I’d say it’s not extreme at all. It’s understandable. It’s justified.

    However, for someone speaking out about society’s lack of empathy towards a particular group – the immunocompromised, your post completely lacks empathy for countless others. Let me provide just one example: My mother-in-law is a public middle school teacher who specializes in kids with developmental delays. Throughout her career, she has helped hundreds of children learn to read. She taught them tactics necessary to overcome the medical conditions that make the simple task of reading extraordinarily difficult for them (from ADD to dyslexia to genetic conditions that delay speech, etc.) When the public school she works at implemented mandatory masking for all teachers and students, it broke her heart to witness the effects of that policy. In those few months, her students regressed tremendously. The incremental progress that took so much time and effort was instantly lost. Many of these kids now have to repeat a year because they have been unable to keep up with their peers. These kids simply CANNOT learn to read when they and their teacher are masked. Watching the teacher’s mouth move and mimicking it while unrestrained by a piece of cloth – it’s a crucial part of the learning process.
    Sure, one could say: Why can’t they learn unmasked via “Zoom school”? These are elementary/middle school kids who attend a public school, so no, their parents don’t have the privilege to quit their jobs in order to assist their kids with remote schooling from home. Nor are they able to hire private tutors who could accommodate their specific needs by teaching them unmasked in a 1:1 setting. Dedicated teachers like my mother-in-law are their only hope. Attending their public school in person and unmasked is their only opportunity.

    Would you really call these parents selfish for hoping for unmasked in-person school? Would you really say to them that their children’s wellbeing and education matters less? I am not trying to shame you or provoke you. I am simply pointing out that one can’t throw the word “empathy” around when their own argument is driven by very unique personal circumstances that leave no room for empathy for other groups out there.

    1. That is definitely something to consider, but (and I KNOW these children matter), they will also not die. They won’t end up in the hospital. There are people with health issues that we need to protect. And the thing is, had everyone just gotten the vaccine or worn masks, we probably would have been able to remove masks at school. WE HAD THIS. And then people didn’t get the vaccine and here we are. So do I think those parents are selfish for wanting their children to have the best possible education? No, of course not. But those aren’t the parents I’m referring to and I’m pretty sure you know that. And I 100% stand by saving the lives of at-risk kids first. Period.

      1. I appreciate your opinion and your response, and I completely understand that it is your mission to speak on behalf of at-risk children and their families.
        I read your post with an open mind, and like I said in my original comment, I find your stance to be understandable and justified considering what your family has gone/is going through.
        The controversy I picked up on and wanted to highlight is specifically around your call for empathy. You write you are appalled by parents who hope for unmasked school come fall. I am simply proposing that for certain parents, this hope is not due to their politics, or carelessness, or lack of empathy for others. And you do respond that these are probably not the parents you are referring to in your opinion piece. But you are advocating for blanket mask mandates for schools, isn’t that right? Implementing mask mandates in schools means showing empathy to kids like your daughter. I wanted to point out that, on the other hand, lifting mask mandates for schools means showing empathy to kids with learning disabilities I described in my original comment.
        My point is that every single decision has trade offs. As compelling as I found your post to be, what doesn’t sit right with me is that you make a strong call for empathy, but don’t at all acknowledge the existence of those very valid trade offs.

        1. I don’t want to debate and it’s the weekend but this has to be said. It’s not just about at-risk children. There are plenty of adults with underlying health issues and the elderly are at risk, too. And as we’ve learned, plenty of healthy adults have gotten sick and died. Children have developed long-term issues as well. It’s rare, but with Delta, we just don’t know what we’re up against long-term.

          Had adults behaved responsibly, we could have stopped the spread and children probably could have gone unmasked this fall, but isolating, masking, and getting the vaccine was too hard for some people and now the virus has mutated and kids are getting sick. So we are where we are because of that.

          I don’t not have empathy for kids who can’t be masked or are unable to learn with masks. Of course I feel for them and their parents, too. I’m human. BUT those kids won’t end up in the hospital or die, while others might, so it’s not a remotely fair comparison. Are we calling hospitalization, missed chemo (risk for relapse) or death for some kids a trade-off? Eek. I hope not.

          1. Coming from a parent with a toddler with a speech delay, I gave frustrations with the pandemic relating to this. We had to go through speech sessions via Zoom during the heigh of the pandemic and saw barely any progress because my son was not interested in staring at a screen. Then when we could have in-person sessions, our SLP had to wear a mask which was frustrating because my son’s issues are with pronunciation and he can’t see her mouth. We’ve seen SO much progress now that she’s allowed to wear a clear face shield but I’m afraid we will have to go back to masks or even Zoom meetings with this variant.

            But my frustration has nothing to do with the fact that we have to wear masks and everything to do with those not getting vaccinated and taking this seriously. If people would mask up and get their vaccines, we wouldn’t be sliding backwards. My son’s speech delay is nothing compared to a child like Margot going through cancer treatment, and it’s our job as a society to protect each other.

    2. I am a teacher as well, and have seen first hand how the pandemic has affected students, particularly ones who, as you describe, truly count on that interaction to be able to learn (not to mention others who rely on breakfast programs and other services at the school). I do understand where you’re coming from and I feel for those students who need that face to face instruction, but you’re saying that Danielle’s post lacked empathy since it focused only on her specific situation (or those very similar), but do you not think yours does as well? Just like her, your reply describes a specific scenario that you have a personal experience with. Both are valid and I didn’t get the sense that she was targeting this anger (for lack of a better word) at individuals with special needs who require face to face instruction. I think it’s pretty safe to say that the majority of people who don’t mask/are against it do not fall into the category that you describe.

      I don’t want to argue but I think there’s room for empathy and compassion for many different people and situations they find themselves in.

      1. I do not disagree. The controversy I picked up on and couldn’t shake after reading Danielle’s piece is that it asks for greater societal empathy but does not acknowledge the valid trade-offs such an ask entails. “Forcing” people to mask in grocery stores is not what I would call a valid trade off, but that’s the one she chooses to highlight. Truly valid trade offs – like the impact of school mask mandates on kids I described in my original comment – are not mentioned at all.
        I get that these are “thoughts from a cancer mom” – she identifies herself as “biased” (for lack of a better term) in that way, and it’s perfectly justified and understandable. But not acknowledging very valid trade offs that affect other groups/parents does her post a disservice, in my opinion. It’s a compelling opinion piece, but it’s also a very frustrating one if you (like me) are personally familiar with situations when the policies Danielle is asking for would cause harm to other groups that equally deserve empathy and accommodation.

  • Thank you for this. It has been such a challenging year(+) for so many. I wish that more people were as thoughtful as you are! I work in healthcare communications and part of that is addressing vaccine hesitancy. All I can say is: It’s really hard. I’m fully vaccinated, and so thankful for that. But it can feel near impossible to connect with people who “don’t believe” in the vaccine (or worse yet, think COVID itself is a scam… oof). I have a 6-month-old daughter who is generally healthy and in day care, basically because I don’t have another choice. Approximately 40% of the staff are vaccinated. My daughter must be vaccinated to attend (with the typical vaccine schedule for her age range, obviously, not COVID). We are very pro-vaxx for her and ourselves, but it blows my mind that she must be vaccinated to go to day care, and the providers there aren’t held to the same standard. Another facility we looked at (virtually) had 15% of staff vaccinated in June, when it had already been readily available for anyone who wanted it for months. I really can’t wrap my mind around it. Wishing you and your family all the best. – A fellow mask-wearer

  • There’s a theme of this whole pandemic where it feels like doing the right thing equates to having a punishment: wearing a mask, staying home, staying away from friends, missing out on big life events….it’s so frustrating, just on a basic fairness level. But life isn’t fair. Anyway, just an observation I had while reading your post.

    My sister is an oncology nurse at the #2 cancer hospital in the country. Her experience during Covid was truly so horrific that I think it will take years to come to terms with, if that’s even possible. She wore a mask at work pre-pandemic (BMT floor) and wears one still now. If she can wear one for a 12 hour shift, I think we can wear ours in the grocery store, etc etc. Full stop.

    The cynic in me thinks that with some Fox News hosts starting to tell people to get vaccinated, there might be a change in some areas. What a twisted thing though.

    So sorry too for the loss of your great aunt – I didn’t realize she died of covid. So many elderly people died an unnecessarily cruel death because of Covid. Virtual hugs to you all and hoping for brighter days ahead. Thanks for sharing this with all of us, I know it make me think outside of my mid-twenties bubble!

  • Unfortunately, this data published by the cdc showed that way more people Vaxxed got covid and more were hospitalized with covid than unvaxxed. What’s even more interesting is that the vaccination coverage among eligible Massachusetts residents was 69%……. and 74% of cases occurred in fully vaccinated persons. Four out of the five people hospitalized for covid were Vaxxed. It’s not just going to magically make it go away. If the vax works to suppress symptoms, you should arguably be more worried about being around someone with the vax who gets covid but has no symptoms than by someone who is unvaxxed, gets covid, and then stays home because they’re sick. It is so very sad that your daughter has cancer. Please don’t let the vaccine give you a false sense of security.

    1. You are right that vaccines are not a cure-all – they never have been. But for anyone reading this who is freaking out – you are conflating two statistics. There was an outbreak in P-town in Mass where over 400 people ended up with COVID. Over 300 of those people were vaccinated. 90% of the cases in that outbreak were a strain of the delta variant. 69% of ALL Mass residents are vaccinated. Of those cases, only 5 ended up in the hospital, no one died. So no, the vaccine isn’t a cure-all, but it is doing what it’s supposed to do – prevent deaths. I agree that the vaccine can give people a false sense of security – just as a child who ends up with chickenpox after receiving the varicella vaccine.

      Bringing this back to Danielle’s post though, I think that she clearly stated that more of the issue is that people aren’t wearing masks and that there are people (sweet little Margot included) that CANNOT risk infection, even if it won’t lead to any sort of high-risk situation for a “healthy” individual. So the least anyone can do who cares about anyone else is where a mask in public spaces!

  • I never leave comments on blog posts but I knew the crazies would be coming out on this post so I just wanted to lend my support to you. Thank you for sharing your story and advocating for the immunocompromised. There are way too many people who literally think covid and wearing a mask is a joke. It’s horrifying and honestly bewildering.

  • I have a neuromuscular disease that really affects my lungs – my lung capacity is SO low just at baseline. Until I could be vaccinated, I didn’t go anywhere, period, other than maybe 3 in person doctors appointments that couldn’t be avoided. Just like you said – it’s been so hard to not only live with the fear, but also really really hard to watch friends/family who just… don’t get it. People who I have known for years, who have seen me hospitalized/in the ICU from pneumonia multiple times, who just seem to have gotten bored with the restrictions and moved on. I’ve had friends who are wonderful, too, but it’s so hard to know that my opinion of people who I really considered some of my closest friends has just been irrevocably shifted.

    I’m really active in the disability community, and I know that face masks have been more burdensome for many – for autistic people, for the d/Deaf and hard-of-hearing. But the solution isn’t to un-mask to help these people… it’s to be vaccinated! They don’t want you to remove your mask to speak to them because they don’t want to be put at even higher risk because of their disability.

    I’ve really appreciated your posts and Instagram stories and thoughts. I know you must get a lot of pushback, but I really appreciate that you continue to talk about it. Sending you and your family lots of love.

  • Thank you for standing up for your daughter and all children and humans in general. A message more people need to hear. ❤️❤️❤️

  • This nonsense is making me want to beat my fists against a wall. My anxiety over getting a covid vaccine was through the roof…not because I didn’t trust science, but because I have had bad reactions to so many things. I got it anyway. It was the right thing to do and the only way to get a handle on this virus. I did it to protect myself as well as anyone I came in contact with. It’s common sense and common decency, two things that seem to have diminished in recent years. I’ve often wondered how things would be had this pandemic happened years before our current political climate.
    I’m in Southern California where we were locked down very early, and had been ridiculed for it and for our mask mandates. I’ve been told that it’s “just too bad” and “they should just stay home” regarding vulnerable people.
    My daughter is an ER nurse..this behavior is such a slap in the face to health care workers and most certain to those with underlying health issues🤬
    I am so sorry for the worry and isolation the ignorant/careless/don’t give a damn about others segment of our population is causing your family!